Friday, February 20, 2009

Brief catchup!!

I went in for my scheduled neuro visit and m.r.i. and due to complications with my injections on copaxone, We decided to switch to Tysabri. My first Tysabri infusion was in November of 08. I was a little nervous about it but I needed to feel better. Everything went smooth, no problems at all. I returned for my December and January infusions and all went well. I go for my 4th infusion on February 27th and have an appointment with my neurologist the same day. That will be my regularly scheduled check up. I am sure that they will schedule a m.r.i. and take blood. I plan to let him know about the weakness in my legs progressing. Other than that I feel great! I feel better now than I have in the last 3 years. My leg weakness is the only problem. I can deal with that if everything else keeps going the way it’s going. I know that was a quick health update but nothing else major or exciting has happened with that. I did finally get my book out and so far it looks like the people that have read it are enjoying it. I feel so much better knowing that people with ms understand what I’m talking about. Also they know that they are not alone in this fight. Now I have more time to work on this second and maybe final solo cd. I have also agreed to do the vocals on a bands cd. They are some guys that I have played with over the years and are very talented musicians. I will have to make sure and not release my cd at the same time they drop theirs. I guess that I need to stop saying “they”. From what I take in the conversations “WE” are considered the band. Names are being kicked around right now. Before I stepped in they had a name and a few lyrics. Now everything has changed. I wrote new stuff to their music and have exchanged very rough tracks with them. Now they are We. That does not effect the solo stuff that I am doing. It just puts more on my plate. I like it because it keeps me busy and is a totally different style of music. I also had a conference call with some very nice women from the NMSS today. We discussed some possibilities that would help spread the word of my book to quite a few more people than I can do alone. I am sending the Lone Star chapter a copy of the book this weekend. I can use all of the help that I can get to help spread ms awareness. David, if you read this, call me! Talk more soon!!

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