2/26/09

This week has been pretty good. I have felt really good and had no drama. I go for my infusion tomorrow. Tysabri is making me feel so much better. At least I think is the tysabri. I have been asked to do a book signing down in Waco on St. Patty's day (night). I really want to because my friend Mark Allen Atwood is playing at the event. It is going to be hard but I think that I am going to make the trip. I'm throwing this out to see if I generate any interest from the waco area. Send me a email if you are in the Waco area.
Talk soon!

Brief catchup!!

I went in for my scheduled neuro visit and m.r.i. and due to complications with my injections on copaxone, We decided to switch to Tysabri. My first Tysabri infusion was in November of 08. I was a little nervous about it but I needed to feel better. Everything went smooth, no problems at all. I returned for my December and January infusions and all went well. I go for my 4th infusion on February 27th and have an appointment with my neurologist the same day. That will be my regularly scheduled check up. I am sure that they will schedule a m.r.i. and take blood. I plan to let him know about the weakness in my legs progressing. Other than that I feel great! I feel better now than I have in the last 3 years. My leg weakness is the only problem. I can deal with that if everything else keeps going the way it’s going. I know that was a quick health update but nothing else major or exciting has happened with that. I did finally get my book out and so far it looks like the people that have read it are enjoying it. I feel so much better knowing that people with ms understand what I’m talking about. Also they know that they are not alone in this fight. Now I have more time to work on this second and maybe final solo cd. I have also agreed to do the vocals on a bands cd. They are some guys that I have played with over the years and are very talented musicians. I will have to make sure and not release my cd at the same time they drop theirs. I guess that I need to stop saying “they”. From what I take in the conversations “WE” are considered the band. Names are being kicked around right now. Before I stepped in they had a name and a few lyrics. Now everything has changed. I wrote new stuff to their music and have exchanged very rough tracks with them. Now they are We. That does not effect the solo stuff that I am doing. It just puts more on my plate. I like it because it keeps me busy and is a totally different style of music. I also had a conference call with some very nice women from the NMSS today. We discussed some possibilities that would help spread the word of my book to quite a few more people than I can do alone. I am sending the Lone Star chapter a copy of the book this weekend. I can use all of the help that I can get to help spread ms awareness. David, if you read this, call me! Talk more soon!!

The week I had............

This week has been a major clusterf***!
It started Monday night when I began having leg cramps and spasms. As the night went on they got more severe. At around 9:00p.m. They were so bad that I took some muscle relaxers and needed help getting to the bedroom. I could hardly support my own weight. I had to take Tuesday off from work. My legs were shot from cramping and the spasms all night. Wednesday my legs were better but still a little wobbley. I was able to return to work but really tired. Thursday everything was much better. I guess it was just a freaky ms thing. That’s what I hate the most. The unexpected slam of crap that hits with ms. I plan to take it easy this weekend and just see what rolls around. I’m not going to plan any recording or anything. If it happens, it happens. I’m about to start writing a short recap of the timeline to date with Tysabri.

Recording day

I spent about 6 hours recording today. I am working on my second cd for those of you that are just checking in. My book sales for "Stop Hugging Me" are doing well so far. I am happy to get it out there. So far everyone seems to like it. I hope they come away with a better idea of where ms has taken me. I just started this blog yesterday and will try to catch up from the end of the book. That was my original idea for this blog. I will fill in the past few months since I started Tysabri , in the next few posting I put up. For now, Just a good day of recording.

Stop hugging me- my new book

I never really thought about writing a book but here it is. I was diagnosed with Multiple Sclerosis in 2006 and the book just developed over time. It is about some of the memorable days over the last 3 years of my life with MS.
you can find it on my website http://www.chriscoxrox.com and also http://www.chriscoxrox.com/book.html
I am currently working on my second music cd.