Just a quick update
I started a video blog where you can see my 10th tysabri infussion and a little about me and tysabri. I will be answering some questions on future videos and who know what else I will do?
I feel pretty good and appreciate all of your support!!
Thanks to Delynn, Tina , Lisa , Mischa, Todd and all of you that have sent pictures in for my friends and fans pages!! you don't know how much that means to me. It has been really hard not being able to play live for so long. I really miss it. To have you guys show that you still support me makes me want to get back out there even more. I would love to have more pictures from my friends! I am going to try and start a street team to help get others involved with pictures and spreading the word. I am still recording and have pushed the release date of my next cd back.
Send pictures or questions for the video blog to chriscoxrox@live.com
Thank you guys,
MUCH LOVE,
CC
Sunday, August 23, 2009
Sunday, August 2, 2009
Inflammation Sunday!
8/2/09
Only with MS’
My legs have been feeling better and better. I have even been walking around the block at night when it’s cooler. Things have been looking up for sure. I bought an electronic drum set to do some drum tracks without having to mic up an acoustic drum set. I messed around with it a little bit this weekend and got it all set up. I also set up to record a few more guitar tracks only to find out the inflammation in my hands was so bad that I couldn’t play crap. MS’ is so wonderful. You just never know what you’re going to get day to day. The CD is taking longer than I had hoped to finish. Hopefully this inflammation will leave my hands soon so I can keep working to finish the cd.
Only with MS’
My legs have been feeling better and better. I have even been walking around the block at night when it’s cooler. Things have been looking up for sure. I bought an electronic drum set to do some drum tracks without having to mic up an acoustic drum set. I messed around with it a little bit this weekend and got it all set up. I also set up to record a few more guitar tracks only to find out the inflammation in my hands was so bad that I couldn’t play crap. MS’ is so wonderful. You just never know what you’re going to get day to day. The CD is taking longer than I had hoped to finish. Hopefully this inflammation will leave my hands soon so I can keep working to finish the cd.
Monday, July 20, 2009
July 20th.
Got my 9th Tysabri infussion today and feel great. I also got my mri results back last week and they showed no new lesions and a reduced size in some of the current lesions. This is awesome news that I was very happy to hear. The new website design has been posted by sheridan and looks great. There will be a few tweaks here and there as we go along but it is pretty much all there. Some of the friend and fan pictures are up in the photo gallery. Send yours in for a chance to win the new CD !
Now back to recording,
Much love,
CC
Got my 9th Tysabri infussion today and feel great. I also got my mri results back last week and they showed no new lesions and a reduced size in some of the current lesions. This is awesome news that I was very happy to hear. The new website design has been posted by sheridan and looks great. There will be a few tweaks here and there as we go along but it is pretty much all there. Some of the friend and fan pictures are up in the photo gallery. Send yours in for a chance to win the new CD !
Now back to recording,
Much love,
CC
Sunday, July 12, 2009
Quick hit
Just a quick note:
Some people are asking about the cd project.
To clear things up, here it is.
I have 2 cd's comming out this summer.
One is a solo cd and the other is a full band project called Sounds behind the sun.
They are both going very well. I think you will dig both of them.
I also get the results of my recent mri on wed. the 15th this month. I will update more after that.
Thanks for all of the follows on Twitter and checking the book out.
Much love,
CC
Some people are asking about the cd project.
To clear things up, here it is.
I have 2 cd's comming out this summer.
One is a solo cd and the other is a full band project called Sounds behind the sun.
They are both going very well. I think you will dig both of them.
I also get the results of my recent mri on wed. the 15th this month. I will update more after that.
Thanks for all of the follows on Twitter and checking the book out.
Much love,
CC
Sunday, July 5, 2009
JULY
I just got back from L.A. last week. The weather was awesome and I felt great!
Had a little 4th of July party with part of the family last night. Now I am having a lazy day. I planned to work on the cd a little today but haven't got off of the couch yet. I am lacking motivation today. I have received a few picture for the win it before you can buy it contest but would like to see more! The book is still doing well, I just need Montel or oprah to read it now....lol
I have a MRI on Tuesday, I can't wait....Yeah right.
This is medical month I guess. MRI, Neurologist appt, Tysabri. I think I have an appt each week this month. Back in the Texas weather sucks. The heat is killer, I could use a bigger AC on the house. Mine can't keep up with the 100 degree days everyday. Still working on the website also. Keep checking back, hope to have it up soon. Send me those pictures and win the new cd when it's done. So much to do, not enough time in the day!
Talk soon!
CC
Had a little 4th of July party with part of the family last night. Now I am having a lazy day. I planned to work on the cd a little today but haven't got off of the couch yet. I am lacking motivation today. I have received a few picture for the win it before you can buy it contest but would like to see more! The book is still doing well, I just need Montel or oprah to read it now....lol
I have a MRI on Tuesday, I can't wait....Yeah right.
This is medical month I guess. MRI, Neurologist appt, Tysabri. I think I have an appt each week this month. Back in the Texas weather sucks. The heat is killer, I could use a bigger AC on the house. Mine can't keep up with the 100 degree days everyday. Still working on the website also. Keep checking back, hope to have it up soon. Send me those pictures and win the new cd when it's done. So much to do, not enough time in the day!
Talk soon!
CC
Sunday, June 21, 2009
June 21st
It's been a while since my last blog. I have had a lot of stuff going on and need to get back on track with this blog. I had my #8 tysabri infusion last friday and everything went fine. I have been feeling pretty good since my last flair up ended. My legs feel really tired but they are working so that's good. I can't believe that I have been on Tysabri for 8 months already. Time has flown by. On the music front, I am still working on the CD. I have added a couple of cover songs into the mix and one will shock you, no hints yet...lol. I leave for L.A. next week so that will back me up on the cd for a little while. I'm not sure of the new release date but I don't want to rush it. Sheridan is working on the new look for the website and I hope to have it up pretty soon. I have seen it and it looks awesome. The artwork for the CD cover is almost done now also. I am launching a contest for someone to win the new cd autographed for free before it goes on sale. All you have to do is take a picture of yourself holding a sign that says "Chris Cox Rox". Make it on paper, a tree, a car, a body, a t-shirt, or whatever you think of. Be creative and the best picture will win. email me the picture to chriscoxrox@live.com
I have also been working on new songs with Sounds behind the Sun. They are some real rockers. If you want some of the heavy side of my music back, this is it. SBTS is going to be a great project and the first band I have worked with since ms hit me. I have been worried about expectations from a band because of my ms but they have been awesome.
Thanks for all of your letters and kind words. The book is still doing really well and I have received many letters from some of you that have read it and I am so happy that it helped you. Remember that you are not alone.
Together we are strong !!
CC
I have also been working on new songs with Sounds behind the Sun. They are some real rockers. If you want some of the heavy side of my music back, this is it. SBTS is going to be a great project and the first band I have worked with since ms hit me. I have been worried about expectations from a band because of my ms but they have been awesome.
Thanks for all of your letters and kind words. The book is still doing really well and I have received many letters from some of you that have read it and I am so happy that it helped you. Remember that you are not alone.
Together we are strong !!
CC
Sunday, May 17, 2009
from may 17th
May 17, 2009
Feeling better but still not 100%. I am fighting through this and ready for my ms to take a break. It has been giving me hell for the last 2 months.
I have a good group of songs together for the new cd but I am still waiting on getting Sheridan down to cut the drum tracks. I also need to add guitar solos and melodic touches in on most of the songs. I have been having weird crackleing and poping show up in the rough mixes so I am fighting with that now also. I took a break from my solo stuff for a little while to cut some vocal tracks on the new band “Sounds behind the Sun” stuff also last week. They have been jamming in Houston and sending me mp3’s of the rehearsals. I have been writing lyrics to the stuff and recording them on the mp3’s that they send me at home. It’s a pretty good system, better than going to Houston to rehearse! That stuff is going pretty good also. The real studio stuff with SBTS is set to take place in mid / late July. I will keep up the info on both projects here on my blog.
I have another infusion coming up on Friday May 22nd. My fingers have felt so swollen the last few weeks that I think they are about to pop. The fun just never stops with ms.
I saw a letter on a website and thought that I would share it with you. Enjoy and we will talk later!
CC
A Letter FROM Multiple Sclerosis
Dear Newly Diagnosed,
I know you don't want to talk to me right now and I can't say I blame you. I'm sure it was quite a shock, finding me camped on your doorstep that day, with my luggage packed. And I know you didn't "exactly" invite me in, but here I am. I'm certain you're probably wondering how I got your address in the first place, aren't you? Everybody always asks me that stupid question. It was easy really. I looked you up in a statistical manual, calculated your genetics and environment, crunched some numbers about your childhood illnesses, relatives illnesses, and basic habits, and I located you. It wasn't hard at all. I chose you because I could.
Now, I'm not saying we have to be friends here. Frankly, I'd be a bit surprised if we got along very well at all. You and I are very different in many ways. For instance, I thrive on surprises, whereas you prefer to always know what lies ahead. I enjoy a big dose of sardonic humor...you prefer a kinder, more mellow approach. I see nothing wrong with pain and suffering...you try to avoid it. A good time for me is kicking ass and taking no names...you prefer a reasonable fight.
Here's the part that's probably really going to piss you off, so I might as well just get it out of the way. To date, no one, and I mean no one, has ever been able to evict me once I decide to move in. Oh sure, some people try to slow me down by scaring me with needles and the like, but I don't leave. I get quiet and reflective sometimes, but I'll never leave you totally. That you can count on, my friend.
So here's how this is going to work with me, like it or not. I'm here and I'm not leaving so we might as well try our best to co-exist. You do some things for me, and I'll occasionally scratch your back (and anywhere I else I choose to itch you, just for the record). I'll give you some good days and if I like you, maybe even a few good months or years. I'll teach you some important life lessons about not taking things for granted, which you'll thank me for later. I'll encourage you to get out of bed and live today to the fullest and to enjoy whatever morsel of goodness The Universe is throwing on your plate. I'll teach you how to appreciate the simple things in life and how not to sweat the small stuff. I'm definitely gonna make you laugh sometimes, even if you don't want to. Likewise, I'm gonna make you cry sometimes because you need to. You WILL learn to respect me or I'll kill you trying. If you think about it from my point of view, I'm not asking for much in return really. I just want to have a good time messing you up. A few laughs when I surprise you with being unable to walk or see. A little chuckle for me when you accidentally wet yourself because I've messed with your bladder. Maybe even a full, belly laugh when I make you ride around in one of those electric chairs or something. It's all in good fun. And again, if I like you, I may not make it a permanent event.
So what do say, roomie? We got a deal? Personally I think you're getting the better end of the stick out of this arrangement, but that's just my perspective. Take your time thinking over your answer. I've got your whole life to await your response.
Sincerely yours,
Multiple Sclerosis
**Contains harsh language**
Dear Multiple Sclerosis Ok, roomie , you evidently have me confused with some one else! I am never up for just a reasonable fight. I love a good fight- so pack a lunch you son of a bitch; you have met your match with me. And I am not ashamed to admit that I fight dirty.Did you ever think that maybe I chose you? Or that maybe it wasn't just coincidental that we ran into each other? Did you really think that I just let you walk in? You need your ass kicked and I'm gonna be the one to do it. I'm your worst nightmare. Friends? We'll never be friends you piece of shit. The needles are just a start as to what I'm going to do to you. It's like Chinese torture-- I'm just starting out with the little things. Needles and steroids are minor compared to the horrifying things I have up my sleeve for you. Sure, I like to avoid pain and suffering BUT I'll also be the first to dish it out. I can be just as vengeful as you. Don't you worry, I'll serve your ass with an eviction notice soon enough!Keep thinking that I'm calm..that's exactly what I want. Go ahead and keep trying to mess with me. When you least expect it- I'm gonna Muhammad Ali your ass. Sure you may get some blows in but, do you really think that messing with my vision or mobility is really gonna take me down? I'm bigger than that. I love life and I'm not going to let anyone or anything get in my way of being happy. It's going to take a lot more than something as sorry as you to hold me back. Oh, and by the way, you think that you're hurting me if I wet myself?? I'm pissing on your face mother fucker! Fuck with my bowels next and see what happens!It's you who has to learn to respect me. I DEMAND respect and eventually you'll give it to me. I don't mind long fights. What's the fun in a three round match? I'll take greater pleasure in TKO'ing your ass in the 12th. Before long you'll be begging for mercy. You'll hate surprises when I'm through with you. I have something that you don't-- HEART AND DETERMINATION. That's why I'm gonna win this fight!You got the short end of the stick when you showed up here! Are you wondering now if you had the wrong address? Nope, I've been waiting for you. I was born with a mission-- it just took me awhile to find out what it was. So, be prepared, I've been in training for over 30 years!And for the record- fuck your perspective and fuck you too.Very truly yours!
THE LAST ONE STANDING
Feeling better but still not 100%. I am fighting through this and ready for my ms to take a break. It has been giving me hell for the last 2 months.
I have a good group of songs together for the new cd but I am still waiting on getting Sheridan down to cut the drum tracks. I also need to add guitar solos and melodic touches in on most of the songs. I have been having weird crackleing and poping show up in the rough mixes so I am fighting with that now also. I took a break from my solo stuff for a little while to cut some vocal tracks on the new band “Sounds behind the Sun” stuff also last week. They have been jamming in Houston and sending me mp3’s of the rehearsals. I have been writing lyrics to the stuff and recording them on the mp3’s that they send me at home. It’s a pretty good system, better than going to Houston to rehearse! That stuff is going pretty good also. The real studio stuff with SBTS is set to take place in mid / late July. I will keep up the info on both projects here on my blog.
I have another infusion coming up on Friday May 22nd. My fingers have felt so swollen the last few weeks that I think they are about to pop. The fun just never stops with ms.
I saw a letter on a website and thought that I would share it with you. Enjoy and we will talk later!
CC
A Letter FROM Multiple Sclerosis
Dear Newly Diagnosed,
I know you don't want to talk to me right now and I can't say I blame you. I'm sure it was quite a shock, finding me camped on your doorstep that day, with my luggage packed. And I know you didn't "exactly" invite me in, but here I am. I'm certain you're probably wondering how I got your address in the first place, aren't you? Everybody always asks me that stupid question. It was easy really. I looked you up in a statistical manual, calculated your genetics and environment, crunched some numbers about your childhood illnesses, relatives illnesses, and basic habits, and I located you. It wasn't hard at all. I chose you because I could.
Now, I'm not saying we have to be friends here. Frankly, I'd be a bit surprised if we got along very well at all. You and I are very different in many ways. For instance, I thrive on surprises, whereas you prefer to always know what lies ahead. I enjoy a big dose of sardonic humor...you prefer a kinder, more mellow approach. I see nothing wrong with pain and suffering...you try to avoid it. A good time for me is kicking ass and taking no names...you prefer a reasonable fight.
Here's the part that's probably really going to piss you off, so I might as well just get it out of the way. To date, no one, and I mean no one, has ever been able to evict me once I decide to move in. Oh sure, some people try to slow me down by scaring me with needles and the like, but I don't leave. I get quiet and reflective sometimes, but I'll never leave you totally. That you can count on, my friend.
So here's how this is going to work with me, like it or not. I'm here and I'm not leaving so we might as well try our best to co-exist. You do some things for me, and I'll occasionally scratch your back (and anywhere I else I choose to itch you, just for the record). I'll give you some good days and if I like you, maybe even a few good months or years. I'll teach you some important life lessons about not taking things for granted, which you'll thank me for later. I'll encourage you to get out of bed and live today to the fullest and to enjoy whatever morsel of goodness The Universe is throwing on your plate. I'll teach you how to appreciate the simple things in life and how not to sweat the small stuff. I'm definitely gonna make you laugh sometimes, even if you don't want to. Likewise, I'm gonna make you cry sometimes because you need to. You WILL learn to respect me or I'll kill you trying. If you think about it from my point of view, I'm not asking for much in return really. I just want to have a good time messing you up. A few laughs when I surprise you with being unable to walk or see. A little chuckle for me when you accidentally wet yourself because I've messed with your bladder. Maybe even a full, belly laugh when I make you ride around in one of those electric chairs or something. It's all in good fun. And again, if I like you, I may not make it a permanent event.
So what do say, roomie? We got a deal? Personally I think you're getting the better end of the stick out of this arrangement, but that's just my perspective. Take your time thinking over your answer. I've got your whole life to await your response.
Sincerely yours,
Multiple Sclerosis
**Contains harsh language**
Dear Multiple Sclerosis Ok, roomie , you evidently have me confused with some one else! I am never up for just a reasonable fight. I love a good fight- so pack a lunch you son of a bitch; you have met your match with me. And I am not ashamed to admit that I fight dirty.Did you ever think that maybe I chose you? Or that maybe it wasn't just coincidental that we ran into each other? Did you really think that I just let you walk in? You need your ass kicked and I'm gonna be the one to do it. I'm your worst nightmare. Friends? We'll never be friends you piece of shit. The needles are just a start as to what I'm going to do to you. It's like Chinese torture-- I'm just starting out with the little things. Needles and steroids are minor compared to the horrifying things I have up my sleeve for you. Sure, I like to avoid pain and suffering BUT I'll also be the first to dish it out. I can be just as vengeful as you. Don't you worry, I'll serve your ass with an eviction notice soon enough!Keep thinking that I'm calm..that's exactly what I want. Go ahead and keep trying to mess with me. When you least expect it- I'm gonna Muhammad Ali your ass. Sure you may get some blows in but, do you really think that messing with my vision or mobility is really gonna take me down? I'm bigger than that. I love life and I'm not going to let anyone or anything get in my way of being happy. It's going to take a lot more than something as sorry as you to hold me back. Oh, and by the way, you think that you're hurting me if I wet myself?? I'm pissing on your face mother fucker! Fuck with my bowels next and see what happens!It's you who has to learn to respect me. I DEMAND respect and eventually you'll give it to me. I don't mind long fights. What's the fun in a three round match? I'll take greater pleasure in TKO'ing your ass in the 12th. Before long you'll be begging for mercy. You'll hate surprises when I'm through with you. I have something that you don't-- HEART AND DETERMINATION. That's why I'm gonna win this fight!You got the short end of the stick when you showed up here! Are you wondering now if you had the wrong address? Nope, I've been waiting for you. I was born with a mission-- it just took me awhile to find out what it was. So, be prepared, I've been in training for over 30 years!And for the record- fuck your perspective and fuck you too.Very truly yours!
THE LAST ONE STANDING
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